Friday, January 18, 2013

I Fell Down The Rabbit Hole

I fell down the rabbit hole :-)
Well, can't believe how long it's been and how much has happened since our last post. I'll try to catch you up without boring you to death :-).Summer 2012 Brian and I went land roaming. My doctors said I needed time to "heal" ( I had brain surgery for those just tuning in :-)). So we headed north, camped in the great Wind River mountains of Wyoming, explored the miles and miles of deserted beaches of Lake Superior. We then headed towards the east coast to John Hopkins Hospital for some more medical tests. My health was not improving, in fact, I was deteriorating. John Hopkins was able to DX a CSF leak. Cerebral Spinal leaks will cause all sorts off issues. This leak was caused or occurred because of the brain surgery. There are few specialists who have success finding and repairing leaks of this nature. Cedar Sanai in Los Angeles, California specializes in CSF leaks. So off to LA we went. Thankfully, we have a friend who lives 9 miles from Cedars :-). Thanks Chris!! Plus my mom flew out to help Brian while I was in the hospital. At no point was I alone, mom or Brian was always with me.
The surgery was major, but it has completely cured me. No more light sensitivity, no more sound sensitivity, and no more head Pain! Wahoo!
On the flip side. My poor brain and body have been through the ringer, so lots of Physical therapy to get my strength back. Through out all this crazy ride, my hubby Brian has been wonderful. Our families unbelievably supportive. It funny how many great times we have had while battling my health issues.

We are selling our sailboat Rain Dog to do some land exploring and charter a catamaran in the Caribbean :-). We think a cat or tri will be our next boat if we cruise the shallow waters of the Caribbean. We also might have the opportunity to take care of an island off the tip of South America :-) We are very much nomads, so who knows what we will be doing! I do know we will be having fun and deliriously happy because we are together.

Below: Brian and I before my last surgery, which cured me :-). I start aquatic therapy Monday :-)
the next picture is of Brian and Chris, our friend in LA. The christmas tree was a gift from Chris ( instead of flowers, pretty cool) we had fun decorating it with pictures of family and friends. The last photo is a pic of my mom with one of my amazing Nurses, my poor mom has had no sleep.

No comments:

Post a Comment